Remote Rare Cancer Nurse Navigator (RN)

Chordoma is a rare bone cancer of the skull and spine. Most people have never heard of it—until the diagnosis changes everything for them. The Chordoma Foundation has spent 20 years making sure that patients and their loved ones can meet that moment, and everything that follows, with confidence and hope. Through our global community of patients, family members, doctors, researchers, and other supporters, we’ve created a suite of educational and support resources, fostered a global clinical network to help patients receive expert care, and made sustained investments in research toward better treatments.

That work has paid off. In recent years, we’ve vastly expanded the number and quality of treatment options available to patients. But a more varied and complex treatment landscape also means patients and their caregivers need more guidance than ever to understand options, ask the right questions, and access the best available care.

That’s where our new Nurse Navigator comes in. You’ll join our established Patient Navigation team (we’ve supported more than 4,000 patients and caregivers to date!), providing personalized, individual support to families in need of guidance at all stages of their chordoma journey. You’ll also—for the first time—bring the deep clinical expertise needed to learn from patients’ medical records, speak the language of their care team, help them weigh complex decisions, and remove barriers to evidence-based care more quickly than ever. In short, you’ll directly ensure that no patient faces this diagnosis alone.

Overview

• New, full-time position
• Fully remote — we do not expect to return to an in-person office setting
• Occasional travel for team and community events (~4-5 times per year)
• Reports to the Director of Patient Services

Responsibilities

Patient and family relationships

• Provide individualized, ongoing navigation support to patients and families worldwide through phone, video, and email
• Assess patient and family needs and preferences to guide responsive support at every stage of care

Clinical guidance and decision support

• Explain evidence-based treatment options, including surgery, radiation, systemic therapy, and clinical trials
• Review medical records and clinical information to identify key questions and support informed discussions with care teams

Care access

• Proactively facilitate referrals to appropriate specialists, treatment centers, and multidisciplinary teams
• Address obstacles related to insurance, travel, finances, and logistics
• Serve as a liaison between patients, caregivers, and healthcare teams to support continuity of care

Network and resource connections

• Build and maintain relationships with physicians, nurses, advanced practice providers, and care teams across the Foundation’s clinical network
• Facilitate utilization of survivorship and quality-of-life resources including psychosocial, rehabilitative, palliative, and peer support

Program improvement

• Maintain accurate records of patient needs, services provided, and outcomes
• Use documentation systems and emerging AI tools to track patterns and strengthen program delivery
• Collaborate across Foundation teams to advance strategic goals

Qualifications

• Active RN licensure required; Master’s degree in nursing, public health, health administration, or related field preferred.
• 5+ years of relevant experience in oncology nursing, oncology navigation, oncology clinical care, or a closely related oncology setting required. OCN, ONN-CG, or similar oncology certification preferred.
• Experience in rare disease, sarcoma, neuro-oncology, brain and spine, or other complex oncology settings preferred.
• Strong working knowledge of modern cancer treatment modalities.
• Demonstrated ability to help patients and families navigate complex care decisions and access high-quality, evidence-based care.
• Experience reviewing clinical information and supporting care coordination across specialists, treatment centers, and multidisciplinary teams.
• Familiarity with insurance authorization and appeal pathways, common barriers to accessing recommended care, and clinical trial processes when relevant.
• Strong ability to build rapport, assess needs, and guide complex conversations through compassionate and effective phone, video, and written communication in a remote environment.
• Excellent problem-solving and organizational skills; ability to manage multiple patient cases and projects simultaneously with independence and exceptional attention to detail.
• Comfort using technology to work effectively (e.g., knowledge- and task-management software, CRMs, emerging AI tools).
• Empathetic, proactive, prosocial, and positive approach to working with all stakeholders, including patients, caregivers, teammates, and external partners.

Compensation and benefits

We offer a competitive salary and benefits package, including:

• 100% employer-sponsored health and dental insurance plans
• Life, vision, and disability insurance
• 401K account with company matching
• 11 company holidays plus 20 days of annual paid time off
• Eligibility for paid sabbaticals at 5 and 10 years of tenure
• Support for professional development, learning, and skills building

In addition, you’ll enjoy:

• A fully remote role with the ability to work from anywhere in the US
• A highly nimble, efficient, and tech-enabled work environment
• Personable, hard-working, and high-performing colleagues who are deeply committed to our day-to-day work, the people we serve, and each other
• Genuine connections with the patients and families whose lives your work will touch